Your Experiences Living With Autism/Neurodivergence

After almost 4 years on the waiting list I finally have my intake interview next week.
It's only a get to know you kind of thing before the actual screening/testing.

I'm both excited but also very nervous for this.

They also asked for a person that has known me for most of my life, a friend or parent.
My parents are from a different generation and don't believe in autism.
And I was always alone growing up, so I have no friends.

My boyfriend won't work, as horrible as that sounds, because he 'doesn't see' a lot of things/learned to live with it.

We'll see how it goes, I'm happy the wheels are finally turning on this thing, and to find out the results, and no matter what those results are, I can get more suitable help for either result.
 
@Jurek7 : All of the following is said with the acknowledgement that I think your post, though ill-informed in parts, was entirely well-meaning:

I also learned that people can train themselves to function better in a society, to the point that at least a quarter of autists are no longer diagnosed as autistic later in life.

I very much doubt there has been a single case of someone "curing themselves" of autism; it is much more the case that it is harder to obtain a diagnosis later in life because of the various masking and coping mechanisms which an individual may have been forced to develop. As for the idea that people who have been diagnosed can reverse this situation - quite apart from anything else, it is hard enough to get a diagnosis the first time round, so why would people even pursue a second diagnosis decades later? :P

Understanding that someone is just as valid person despite autism is important, however I would encourage people to practice and learn to function in a normal society.

The second half of this sentence is diametrically opposed to the first half - understanding and acceptance of our personhood and validity means *not* expecting us to force ourselves to fit in with the "normal society" that so often does not grant us the understanding which you claim to recognise as important.
 
They also asked for a person that has known me for most of my life, a friend or parent.
My parents are from a different generation and don't believe in autism.

That *may* be an issue, but equally it may not - at the end of the day it doesn't really matter whether your parents believe in autism or not, as the purpose of the request isn't actually to provide someone who agrees with the diagnosis, but rather someone who is able to talk about what you were like as a child, and answer questions about your development milestones, your social skills in school, any quirks or habits you may have had and so forth. As such, unless you think there is a chance your parents would refuse to provide this information when asked, actively lie about the answers, or simply refuse to attend the appointment, they may still be able to provide the required information even if they don't agree with the hoped-for conclusion.
 
I remember my brother denying my diagnosis and just calling me an “awkward normie”. The “normie” tag probably gives him the justification to raise his expectations on me instead of giving me the benefit of the doubt, and sling around the previously mentioned underhanded comments.
 
That *may* be an issue, but equally it may not - at the end of the day it doesn't really matter whether your parents believe in autism or not, as the purpose of the request isn't actually to provide someone who agrees with the diagnosis, but rather someone who is able to talk about what you were like as a child, and answer questions about your development milestones, your social skills in school, any quirks or habits you may have had and so forth. As such, unless you think there is a chance your parents would refuse to provide this information when asked, actively lie about the answers, or simply refuse to attend the appointment, they may still be able to provide the required information even if they don't agree with the hoped-for conclusion.

I know, I did realize that. But even then, they wouldn't help.
Since they don't really believe in it, they just tell me to get on with it, they wouldn't have anything to add really.
My 2 nephews have been diagnosed over 6 years ago, and how my mom complained to me they are fine, and how rubbish it is that they got tested, etc.
And even though they are my parents, they were never very much involved with me when I was younger, and actually don't really know me.
And when I started my teens my sister was born, so I was 'forgotten' even more.
 
I would define the experience as this: I would be most happy if there was a switch that could turn autism 'on' and 'off'. What I mean is that I enjoy being neurodivergent when by myself, or around people I feel comfortable around. What I enjoy most is the tendency to desire depth over breadth; numerous other people in here have described their areas of interest, and these offer a tremendous amount of depth and joy (and may well help in my desired career path in academic research). This can further extend into exploring, for example, music and books in greater depth than most/many neurotypical people.
However, social situations can be very difficult. It's sometimes as if neurotypical people have secret 'knowledge' that you have somehow missed out upon. Hence it's all too easy to withdraw and spend the majority of time alone (not necessarily a bad thing). But since realising that I am likely autistic a couple of months ago I have slowly been learning to accept the good and the bad, and importantly no longer criticise myself for doing what I need to do to cope.
 
Just curious, but any other 'neurodivergent' folks find it extremely difficult to cut ties with past relationships and emotions (whether it be romantic or just friendly, or certain past situations that just get certain emotions going whenever they're mentioned) or is it just me?
I'm hoping some of you others have had experiences like these and gotten past them, because I want to know ways others have been able to surpass them as I struggle greatly with getting past the... well, the past.
 
Just curious, but any other 'neurodivergent' folks find it extremely difficult to cut ties with past relationships and emotions (whether it be romantic or just friendly, or certain past situations that just get certain emotions going whenever they're mentioned) or is it just me?
I'm hoping some of you others have had experiences like these and gotten past them, because I want to know ways others have been able to surpass them as I struggle greatly with getting past the... well, the past.

I'm completely the same. Every relationship or friendship that has ended years ago, and then I'm talking +15 years, it'll just play back constantly at times in my mind. Just not thinking about it isn't working (I guess that sounds odd though?).
 
After almost 4 years on the waiting list I finally have my intake interview next week.

I finally had the assessment last year July.

On a personal level, it's cleared up a lot of things and answered lots of questions I had.
Tough, have always felt for many years this would be the outcome, I do feel it's been really good having the actual assessment and confirmation.

Work-wise, most still see me as the same person I was before the assessment, and I really am. Apart from my manager, it's become clear to me that autism is suddenly all she sees.
 
I have diagnosed Asperger's and ADHD. I got my ADHD diagnosis when I was like 5 or something, but my mom only had me go to get screened for autism last year. (in retrospect, it was kind of obvious. My 'indoor voice' can be heard across the room, I am weird and socially oblivious at times)
As far as I can tell, my life hasn't been super impacted by my neurodivergence, in large part due to my extremely supportive parents. My dad and sister both have ADHD, and my mom is a child neurologist, so dealing with this type of stuff is literally her full time job (she also sees kids with epilepsy, chronic headaches and whatnot).
I am extremely extroverted and have no trouble with speaking in front of large crowds.

When I was having my autism screening appointment thingy, I later learned that what sealed the deal for my diagnosis was when I went on a 5-minute rant about the Ocean Rider Seahorse Farm in Hawaii nigh-unprompted. And I think that is kind of hilarious.
 
Hello.

According to three therapists who have kept in touch with me over the last two years (no, I didn't have a problem with any of the three. There was a change of schedule that forced me to change the therapist and the third was hired by the school where I studied), I am most likely in the neurodivergent club. All three assumed that I am gifted, and two of them believe that I have ASD. The suspicion of autism doesn't stop there either: friends and family also believe in this possibility.

Being neurodivergent in Latin America, a region where interpersonal relationships are much warmer than in Western Europe, is a challenge that I would not wish even on my greatest enemy. Socializing is terrible when you don't share the same interests that most people have (this point is universal, but I would say that in places with fewer support networks and leisure options, the situation is exponentially worse) and the suffering is absurd when we talk about dating.

My love for animals is kind of an escapism from certain things I've had to deal with throughout my life, which is much better since I started college and discovered who my true friends are
 
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Lately my autism spectrum disorder has been giving me increasing issues with heightened and nearly always present anxiety, elevated and near constant stress, low frustration tolerance and easy panic, even by small problems or unexpected situations.

This has bothered me several times at different zoos I have visited in the last month or so, but has also increasingly been an issue outside of zoos, for example on public transport.

Actually the vast majority of my recent zoo visits - and of my regular days - have gone quite well and have been quite enjoyable, but these little moments of negative thoughts, panic and meltdown stick quite a bit more in my mind and continue to bother me.

I worry rather greatly about personally getting into some kind of trouble for these brief periods, which have sometimes included societally undesirable behavior like panicked yelling or inappropriate reactions or expression of irritation or anger to situations, and also about the influence of this behavior on the perception of, tolerance for and inclusion of neurodivergent people and people with mental health issues by the general public. Also as someone who generally despises the amount of public nuisance behavior in today's society I feel guilty about having contributed to that myself. Generally I have been quite upset and angry with myself over my behavior lately.

I'm having a hard time being really optimistic about me continuing to visit zoos, and I have already realized an at least temporary ban/break and cancellation of my remaining plans for 2024 are necessary. I do want to continue, but substantial change will have to occur for that to be a realistic option. I am going to try and solve some things with my doctor and therapist, but I am not terribly hopeful about saving the zoo hobby for myself right now.
 
Lately my autism spectrum disorder has been giving me increasing issues with heightened and nearly always present anxiety, elevated and near constant stress, low frustration tolerance and easy panic, even by small problems or unexpected situations.

This has bothered me several times at different zoos I have visited in the last month or so, but has also increasingly been an issue outside of zoos, for example on public transport.

Actually the vast majority of my recent zoo visits - and of my regular days - have gone quite well and have been quite enjoyable, but these little moments of negative thoughts, panic and meltdown stick quite a bit more in my mind and continue to bother me.

I worry rather greatly about personally getting into some kind of trouble for these brief periods, which have sometimes included societally undesirable behavior like panicked yelling or inappropriate reactions or expression of irritation or anger to situations, and also about the influence of this behavior on the perception of, tolerance for and inclusion of neurodivergent people and people with mental health issues by the general public. Also as someone who generally despises the amount of public nuisance behavior in today's society I feel guilty about having contributed to that myself. Generally I have been quite upset and angry with myself over my behavior lately.

I'm having a hard time being really optimistic about me continuing to visit zoos, and I have already realized an at least temporary ban/break and cancellation of my remaining plans for 2024 are necessary. I do want to continue, but substantial change will have to occur for that to be a realistic option. I am going to try and solve some things with my doctor and therapist, but I am not terribly hopeful about saving the zoo hobby for myself right now.

I used to have similar issues, but of course there are many different forms of autism and further factors that come to play, so my experience and lessons I have learned might be able to offer some help or maybe not. Hopefully in the later case somebody else migth offer their advice.

Forgive me if I read something into your statement based on my personal experience, I dont mean to project.

What I read is that you put a lot of pressure on yourself, what might create a sort of loop back loopback/spiral. Like mentioned did I have the same issue the year I had my break down that lead to my official diagnosis. Until that point I was perciefed as relatively normal functioning, but that was so called mascing and all of that extra work to constantly pretend to be an entirely different persona lead to a burn out that consequentialy also lead to the development of an anxiety disorder and ocd. Both got better once I found a psyachtrist who, I felt was pretty much the first person in my entire life who wanted to help me instead of thinking the only thing I needed was to fit in. Medication might not work for everybody and should self speakingly only be concidered when monitored by a professional, but in my case did it not just have positive effects on my depression, anxiety disorder and ocd but also symptoms of my autism in the form of the brain fog and generaly overstimulation. Important note this might have been a placebo effect, but the specific type of antidepressiva even the brand had impact on the functionality.

The extent of autism and mental health issues can result from different conditions, some are geneticaly, some are products of a disfunctional enviorment, either way dont pressure yourself, dont tell yourself that you would be the one in the wrong. Us autistics found ourself in a world thats transitioning, but is not there yet. Its not a lack of empathy and will in others rather than a lack of familiarity

A lot of neurotypical people are just blind to a lot of the disfunctions in society, or just dont bother because the system was created in a way that kept them compliant. The issues autistic or mentaly ill people uncover challenge the system and a lot of people dont react all too positive to that for several reason, might that because they fear the change could negatively impact them. Theres that false attitude of I went through stuff and so should you. Some feel as if autistic would get too many benefits they envy, but the issue did not lay with the disabled but a system that forced them through stuff nobody would have to inherently face. All of this is complex, but does have an impact on some autistic individuals. A family member of mine works in the autistic treatment center of a hospital, we often talk about the many factors that impact the lifes of neurodiverse individuals, I mean I can also add my experience first hand.

Dont view the revelations and informations as burdens, sometimes it can feel as if more knowledge could lead to less satsifaction, because not knowing left room for alternative solutions, but in the end would only reality apply and one thing I can tell there are a lot of solutions that are just not known yet.

Just because there is not much understanding and support yet does not mean it would never come. Every single day does society make progress, I can confirm this first hand. I can confirm this first hand, when I was diagnosed there was very very little understanding seemingly no knowledge in other people. I had friends parents of friends, family, more distant relatives, neighbours, teacher, other students, even random people along some professionals claim utter nonsense just because they could neither admit that they lacked information nor reflect on the prejudices.

Another fundamental aspect was a therapist who despite not being especialy trained for autistic, made the specific effort to educate themself on the topic so that they were able to draw the line between what I could genuinely not do due to my disability and what things I just needed to get more used to.

In beginning did I also start to lose controll of my masking and the disorder I have developed due to false treatment started to get through, and people did look scared because I was visibly in disstress. I suddenly kept standing in the middle of the path because I was so overwhelmed that my body froze and no then I could not just go to the side.

A break can be emotionaly challenging but necessary to allow your brain to sort out it self in my experience. There had always been a problem with me thinking I could and failing to read the signals of my body. Generaly speaking have I always felt as if my brain had always that much going on that signals from my body like hunger thirst over heating pain and general stress did not get through and therefor have I unintentionaly caused both physical and mental trauma to myself.

There is no fixed schedule of how to do what when and how, we are the pioneers of these things and this can be unpleasant but since we could not change the state we found ourselves in we might as well also be a proud of ourself that we dare to persist. Mean outlook is complex, sometimes people tell you how to view things, but neither are they always right nor is that even an option in some cases.

I did not went to any zoo for seven years when previously I never went without a visit for longer than a month max. Not that it would always take that long, but rather had to do with a lot of other stuff I needed to sort out first. But I can tell this break has helped so much, that I no longer

Cant tell if this is also the case in your home country, but in germany are people with severe mental health issue and disabilities entitled to bring a support person along with them. Something I have made use of since I would have two tendencies that could bring me and others into danger when stressed, either standing still or at least mobing slowly whilst I fight sorting all the stimulation out or walking suddenly much faster to get away from the situation was has caused me to even falsely read a read headlight as green and walking on a then empty street what had me almost run over several times.

It can be very benefitial to plan your day out ahead in the sense of memorizing calm corners of the parks. Some institutions have more of them some less, so you might want to adapt your plans temporarily to be able to further create positive experiences that can strengthen your confidence and therefor capabilities to tackle going out into more or less crowded spaces.

Some aspects of your autism might stick around but are not to be read as negative even if they would make things a bit more difficult but its your disability its not you letting go of yourself, other parts are enviormental and can happily get trained and be patient. I was very upset when both the medication and therapy did not work within weeks and months. I know years can sound horrible but to have the chance to see a light at the end of a tunnel is already a lot, remember it does get better even if you cant sense that yet. In many cases have I only realized the progress when I forgot to focus on it that much. You are strong even if you cant feel that yet. You also seem to be not as deep in the maze as I was when i recieved my diagnosis so your outlook is even better. Dont give up hope, dont allow the intrusive thoughts get to you. Ask yourself what are the sources you might feel stressed that would lead to such disorders. There can also be nutritional problems, but just because the spectrum would offer several explanations would not mean your solution would not be among them. Get well soon.

We autistic do already a lot to fit in now its time for the neurotypicals to do their half meeting us half way.
 
Older teenager with ASD and OCD reporting for duty. As an “aspie” and a guy with OCD, most days are manageable, but my lows are incredibly low considering my “double-whammy” of having TWO disorders. The good news is that I’m easily the most intelligent and attention-to-detail student in my class. I’ve always loved animals (and as of late, plants and gardening) and I feel as if that was an early sign of my Asperger’s shining through. The not-so-good news is my somewhat noticeable social anxiety and EXTREME claustrophobia. It’s an absolute battle managing to get myself on an elevator, and even some rides at theme parks terrify me, not because of a fear of heights or anything, but because of my fear of being stuck in the restraints with no means of escape.

Since I live in a relatively rural part of the state (and the country for that matter), it’s not always easy to find like-minded people in the area, but I’ve got a few friends who have similar afflictions. In addition, I’ve got a personal family friend who just so happens to be a therapist, so he makes it manageable. Unfortunately, he’s retiring this year :(.
 
Decided I'd give my two cents on the matter:
While I do not have an official diagnosis (mainly due to me having some neurotypical characteristics and some neurodivergent ones - doctor's words, not mine) I would consider myself as being what used to be called an "Aspie". I did have to get speech therapy while I was younger, but through many years of ups and downs I do feel I can function relatively well in society, and have learnt to be far more flexible. While I am aware it is different for everyone, one should be able to learn how to live with Neurodviergence and still function in society over the course of their lives with a little guidance.

Honestly, some aspects of autism can be more marked than others as well, even as you grow and develop. I still have my "special interests" or passions as I would call them, such as history and animals, but there are more subtle things, such as me occasionally struggling to take in jokes (though I have gotten much better at this over the years). I personally struggled a lot adapting and learning that rules aren't meant to always be incredibly rigid, and that you can be flexible with some: for example, I used to be very strict about crossing on zebra crossings, but understand now that you can be a bit less strict depending on the circumstances.

Sensory-wise, I also used to struggle a lot with clothes, but have also improved in this regard substantially (six-year-old me would be mortified to see me wearing denim like I did today :eek:). I never have really struggled with food however. Of course, I still do suffer from some sensory issues such as incredibly loud and crowded spaces, but they are not as big an issue as to say I cannot walk around out and about like everyone else. While with a bit of a closer look most people can tell I am autistic to some degree, I do not feel like it gets in the way of my life as much as it used to.

However, I do not go around openly declaring I am autistic or anything of the sort, mainly because that is not my defining feature, and there is more to me than that. And while society, at least in Western Europe, has made leaps and bounds in accepting people regardless of neurodivergence, I still feel there is some slight variation on how people can treat you in a misguided attempt to sympathise, and how many will, for better or for worse, see you as autistic first and everything else second if that's the first impression they get of you. Some steps still need to be taken by the neurotypical public to fully accept us, but I feel one day we will get to that point as we understand it more and more.

I find it really cool how many neurodivergents are on this platform, and am glad to share a community with all of them as well.
 
Hello.

According to three therapists who have kept in touch with me over the last two years (no, I didn't have a problem with any of the three. There was a change of schedule that forced me to change the therapist and the third was hired by the school where I studied), I am most likely in the neurodivergent club. All three assumed that I am gifted, and two of them believe that I have ASD. The suspicion of autism doesn't stop there either: friends and family also believe in this possibility.

Being neurodivergent in Latin America, a region where interpersonal relationships are much warmer than in Western Europe, is a challenge that I would not wish even on my greatest enemy. Socializing is terrible when you don't share the same interests that most people have (this point is universal, but I would say that in places with fewer support networks and leisure options, the situation is exponentially worse) and the suffering is absurd when we talk about dating.

My love for animals is kind of an escapism from certain things I've had to deal with throughout my life, which is much better since I started college and discovered who my true friends are
Something I forgot to mention is how being neurodivergent makes someone "gay" to most Brazilians.

If you don't share the average man's hobbies (especially playing football/soccer and drinking beer), you are automatically homosexual to their eyes. Basically, ableism and homophobia combined.

Making new friends is going fine, I guess, but having to thoroughly examinate every single interaction so I don't look "autistic" is pretty tiring. Definitely saw some improvements, though.

My dating life hasn't improved since August 2024. To make matters worse, I'm 5'7" when Gen Z male beauty standards are just unhinged. I'm increasingly starting to believe most incels are actually just victims of ableism who became bitter after suffering with rejection from both "friends", family and potential mates. I am also starting to doubt wether or not I'll ever be able to have kids...

I have had the thought of quitting this game since I was nine, and back then I already knew I was not "like other kids".
 
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Some people it completely changes the way they perceive us I think, but for the most part (in Sydney, Australia), people are nice and accepting about.
 
Some people it completely changes the way they perceive us I think, but for the most part (in Sydney, Australia), people are nice and accepting about.
Indeed, Western nations are waaay more accepting when it comes to people on the spectrum. Sometimes being autistic can even be seen as an attractive trait because people with autism are usually very knowledgeable about their special interest.

Western culture is also way friendlier to aspies. Physical touch is less prevalent and people are more literal/straight to the point. I hate the fact having to understand things which are implied (and not explicit) is a cultural trait of us Latinos. I can't tell if a woman is attracted to me or not by signs of interest alone, so I'd only ask someone out if it is heavily implied she is into me.

I see physical touch is seen as a choosing signal in places where people aren't touchy. However, it's living hell when even people who are not into you are touching you all the time...
 
Something I forgot to mention is how being neurodivergent makes someone "gay" to most Brazilians.

If you don't share the average man's hobbies (especially playing football/soccer and drinking beer), you are automatically homosexual to their eyes. Basically, ableism and homophobia combined.
I can relate to this in Spain, and even the UK as well in terms of football in particular. I have received my far share of teasing for those reasons among peers of my age, and while it isn't something incredibly hindering in my experience, it is far from pleasant and can be a bit denegrating. It depends on the person, but learning how to understand implicit signals can be done with a bit of practice, but nobody's perfect, and I still struggle at times to see some hints and signals, either to others' amusement or occasionally at my expense.

As far as physical touch goes, I definitely can relate to it being uncomfortable, but have learnt to tolerate and accept it for the most part, while I absolutely cannot stand anything going near the insides of my elbow, for example, which is minor and normally never a problem (until you need to go to a doctor's for a blood test!)
 
Indeed, Western nations are waaay more accepting when it comes to people on the spectrum. Sometimes being autistic can even be seen as an attractive trait because people with autism are usually very knowledgeable about their special interest.

Western culture is also way friendlier to aspies. Physical touch is less prevalent and people are more literal/straight to the point. I hate the fact having to understand things which are implied (and not explicit) is a cultural trait of us Latinos. I can't tell if a woman is attracted to me or not by signs of interest alone, so I'd only ask someone out if it is heavily implied she is into me.

I see physical touch is seen as a choosing signal in places where people aren't touchy. However, it's living hell when even people who are not into you are touching you all the time...
Have you thought about moving to a more socially progressive country?
 
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